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Showing posts with label mental health. Show all posts
Showing posts with label mental health. Show all posts

Tuesday, August 14, 2018

Clinical Trial - Assessment Appointment



I was meant to be starting cyclosporin a few weeks ago. The day after I saw my derm I received a phone call in regards to a new clinical trial that was about to start. I would be guaranteed either humira or bimekizumab. I thought why not try it. What have I got to lose?

Yesterday was the screening appointment. It took longer than expected and it made for a very long day travelling in to the city from the country. I have a new pasi score of 16.3 (down from 21). I had an ECG, chest x-ray and blood tests done. I also gave a detailed medical history. I really thought that they may have wanted to know when I had my last poop

All I need to do is wait for the results of the tests, provide a mental health evaluation (due to having depression and there were some concerns) and I should find out in a couple of weeks whether I made it into the trial.

I stopped taking methotrexate earlier this month and next Monday I will need to stop using any medicated lotions and potions as there needs to be a 2-4 week wash out. My skin is flaring, red, angry and sore right now so I am really hoping that I make it in to this trial. If not then I start the cyclosporin and resume seeing my dermatologist as previously planned.

Friday, August 03, 2018

Update: Psoriasis Clinical Trial



I received an email on Wednesday in regards to the psoriasis biologic trial. It's a lot more involved and longer than I was told it would be but that's okay.

Each visit (29 of them) may take up to 4 hours  some of them will involve a complete medical examination. I will be required to complete a daily diary on how my skin & mental health is going & there's a weekly questionnaire as well. There are some restrictions on medications, prescribed and OTC, that I can take and some that I may need to stop whilst on this trial.

However this is all subject to my passing the screening visit, which wont be for another couple of weeks. There will be only three patients accepted at this particular clinical trial It's a global study that has 100 other clinics participating. So I may not even qualify.

There is a small bonus though if I make it on to the trial, I will be entitled to some compensation in regards to my travel. As my Mum would have said, Every little bit helps said the little old lady as she widdled in to the ocean

Oops almost forgot the biologics involved are bimekizumab and adalimumab (humira).